Local Support Groups
If you would like me to add your organisation to this list, contact me. I would also be delighted to add links to your site. If you don't have a web site, I can add a page about your organisation to this site. Just email me some information and photographs.
If you know that any of the information on this list is out of date, then please contact us.
| Bristol Area Downs Syndrome Support | That's us! |
|
Downs Syndrome Association Langdon Down Centre Tel: 0845 230 0372 Website www.downs-syndrome.org.uk |
Information on all aspects of Downs Syndrome |
| Avon Parents Network………… 28 Bright Street Barton Hill Tel:0117 9413999 0117 9556971(Ext:234) |
Support to carers of African, African-Caribbean,Asian, Chinese and Vietnamese origin |
| Black Carers Project Kuumba Project . 20-22 Hepburn Road St Pauls Bristol BS2 8UD 0117 9144491 |
|
| Bristol & SW Childrens Heart Group 53 Sunnningdale Yate Bristol BS37 4HZ 01454 319456 |
|
|
Contact a Family |
This organisation will put you in contact with another family who have a child with a rare medical condition |
| Council for Disabled Children C/o National Children's Bureau 8 Wakley Street London 0171 843 6000 |
|
|
The Downs Heart Group PO Box 2460 |
The Down's Heart Group is a UK charity which offers support and information to families who have a member with Down's Syndrome and congenital heart defects.Everyone involved with the Group is themselves a parent (if not natural, then foster or adoptive), or in a few cases a grandparent. We have all found it helpful to be in contact with other families, perhaps it would help you too.
|
| Disability Advice Centre Pamwell House Easton Bristol 0117 9413008 |
Advice on problems eg Benefits Claims Disability Rights |
| Disability Alliance 1st Floor East Universal House 88-94 Wentworth Street London E1 7SA 0171 247 8776 |
Publishes the Disability Rights handbook |
| Families in Touch - Bristol Beachley Walk Shirehampton Bristol BS11 9PU 0117 982 0584 |
Contact with Families whose child has specific condition or rare syndrome |
| Family Fund PO Box 50 York YO1 2ZX 0904 621115 |
Charitable Trust that can provide grants for laundry equipment / holidays Apply in writing |
| Genetic Counselling (referral by your GP) |
Advice on genetics / help when considering having another child |
|
Gut Motility Support Group |
|
| KHASS St Werburghs Community Centre Horley Road Bristol BS2 9TJ 0117 955 4070 |
Family support to Asian families with child with special needs Information for parents Workers include Urdu, Punjabi, Hindi and English speakers |
| Mencap 123 Golden Lane London 0171 454 0454 |
|
| Musicspace Southville Centre Beauley Road Southville Bristol 0117 9531731 |
Charity offering Music Therapy that may be funded by your Health Trust or by yourself |
| Phoenix NHS Trust Upper Belgrave Road Clifton, Bristol 0117 9731127 |
Services for people with learning difficulties |
|
Portage Service |
Offering portage / early education. You can refer yourself for Portage. |
|
Portsmouth Downs Syndrome Trust |
Information on all aspects of development and education, specifically speech development |
| Sharing and Caring Unit 31 Easton Business Centre Easton BS5 0HE 0117 9415868 |
Charity offering a Befriending and Baby-sitting service |
| Supportive Parents for Special Children 3rd Floor Royal Oak House Royal Oak Avenue Bristol BS1 4GB Tel 0117 9897725(helpline) 0017 9897724 (admin/fax) |
Invaluable support if you are moving your child into the Education System. SPSC will help you find your way through the maze of Statements, SENs, LEAs, SENCOs, IEP, IPPs......etc! |
| Woodside Centre Woodside Road Kingswood Bristol |
For young children who have a sensory impairment - (eyesight/hearing) |